Over The Lips, Past The Gums, Lookout Stomach Here It Comes

After learning about the new team taking over the home vent program that Ryan would be apart of, we asked to have him transferred. This week mom and I heard that the doctors at Children's Hospital Los Angeles have accepted Ryan to become a patient at their hospital. In order for Ryan to be enrolled in the home vent program that CHLA offers, he has to be a patient of theirs first. The only problem is that the unit that he would go to is full. So as soon as they have a bed available, Ryan should be moving. Who know when that will be.


Ryan passed his swallow study on 7/30 and since then we have been trying different liquids and baby food to try and teach him how to eat orally. Every time we would bring a bottle or spoon to his mouth, he would try and swat our hands out of the way and would make faces and whine. We know it will be a long process to to get him to take and enjoy food. Yesterday, Mom thought it was a good idea to try to feed him rice cereal. Her thinking was that the sweetness or flavors we were giving him might have been a lot more stimulation than he could handle. The rice cereal was bland enough and he seemed to really enjoy it. There was no swatting, faces or whining. He still hasn't grasped the concept of anticipating the next bite, so we have to sneak the spoon in when we get the chance. In between all of the small rice cereal bites we added a small amount of carrot baby food. He didn't seen to notice, but we thought it was fun.

This week was semi uneventful, but I guess that is a good thing when a hospital is involved. When Ryan gets transferred to CHLA we should have more details and new things to talk about.

Photo Timeline *please use viewing precautions around children*

This week has been a little slow on any updates about Ryan. There was only really one event that stood out. The doctors at Loma Linda are trying to send Ryan back to the sub-acute facility that he was at in the past. Mom and I are putting our feet down to say that he will not be going back to that facility. We are concerned that his health and safety could possibly be compromised and the facility did not prove themselves worthy the first go around. There are no second chances for them. We have learned this week that the pulmonary team will be taking over the home vent program that Ryan is going to be enrolled in. This is another problem for Mom and myself. We do not have confidence or agree with the decision that this group has made in the past. We have asked the intensive care drs to put in a request to transfer to Children's Hospital Los Angeles. We will be able to start fresh and hopefully get new insight on Ryan's care. We should have an answer by next week.

We are going to use the rest of this post to show a timeline of photos taken throughout Ryan's Life. Some photos may be more graphic than others.

                                          3/8/11

                                          4/3/11

                                                       

                                          5/12/11

                                          6/9/11

                                          7/10/11

                                          8/15/11

                                          9/15/11

                                          10/18/11

                                          11/19/11

                                          12/10/11

                                          01/01/12

                                          2/23/12

                                          3/3/12

                                          4/3/12

                                          5/17/12

                                          6/5/12

                                          7/22/12

                                          8/5/12

As of today, this is the progression of Ryan's growth. Some photos are happier than others, but the result is well worth it.